TEDxRiodelaPlata
Carina Morillo: To understand autism, don't look away
Karīna Moriljo: Lai saprastu autismu, nenovērs skatienu!
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Kad Karīnas Moriljo dēlam diagnosticēja autismu, viņa par to nezināja gandrīz neko. Viņa zināja vienīgi to, ka Ivans nedz runā, nedz reaģē uz vārdiem un ka viņai jāatrod veids, kā izveidot saikni ar dēlu. Karīna stāsta, kā viņa iemācījās palīdzēt dēlam izpausties, kopīgi daloties zinātkārē.
Carina Morillo - Autism advocate
Carina Morillo is an advocate for the social inclusion of people with autism. Full bio
Carina Morillo is an advocate for the social inclusion of people with autism. Full bio
Double-click the English transcript below to play the video.
„Paskaties uz mani!”
00:13
"Look at me!"
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00:16
That phrase turned me
into an eye-contact coach.
into an eye-contact coach.
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Ar šiem vārdiem
es kļuvu par skatienu treneri.
es kļuvu par skatienu treneri.
00:22
I'm the mother of Ivan; he's 15 years old.
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Es esmu piecpadsmitgadīgā Ivana mamma.
00:26
Ivan has autism,
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Ivanam ir autisms, viņš nerunā
00:28
he doesn't speak,
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00:30
and he communicates through an iPad,
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un sazinās caur iPad,
00:32
where his whole universe of words
exists in images.
exists in images.
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kurā ir visa viņa pasaule
ar vārdiem, kas pārvērsti attēlos.
ar vārdiem, kas pārvērsti attēlos.
Ivana diagnozi uzzinājām,
kad viņam bija divarpus gadi,
kad viņam bija divarpus gadi,
00:37
He was diagnosed
when he was two and a half.
when he was two and a half.
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00:43
I still remember that day painfully.
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un vēl šodien atmiņas
par šo mirkli man ļoti sāp.
par šo mirkli man ļoti sāp.
00:49
My husband and I felt really lost;
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Abi ar vīru jutāmies ļoti apjukuši.
00:53
we didn't know where to begin.
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Nezinājām, ar ko sākt.
Nebija interneta kā tagad,
00:56
There was no internet,
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informāciju nevarēja iegūglēt.
00:59
you couldn't Google information,
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01:02
so we made those first steps
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Tā nu šie pirmie soļi
bija tīras intuīcijas vadīti.
01:05
out of sheer intuition.
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01:09
Ivan would not maintain eye contact,
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Ivans neveidoja acu kontaktu,
01:13
he had lost the words that he did know,
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bija zaudējis tos vārdus, ko zināja,
01:16
and he didn't respond to his name
or to anything we asked him,
or to anything we asked him,
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nereaģēja uz savu vārdu,
neatbildēja ne uz vienu jautājumu.
It kā vārdi būtu vien trokšņi.
01:21
as if words were noise.
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01:25
The only way I could know
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Vienīgais veids,
kā varēju saprast, kas ar viņu notiek,
01:30
what was going on with him,
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ko viņš jūt,
01:32
what he felt,
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01:34
was looking him in the eye.
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bija, ieskatoties viņam acīs.
Taču šis tilts bija sabrucis.
01:37
But that bridge was broken.
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Kā iemācīt Ivanam, kas ir dzīve?
01:42
How could I teach him about life?
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01:47
When I did things he liked,
he would look at me,
he would look at me,
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Kad darīju to, kas viņam patika,
viņš uz mani skatījās,
01:51
and we were connected.
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un mēs bijām vienoti.
Tā nu es turpināju
kopā ar viņu darīt šīs lietas,
kopā ar viņu darīt šīs lietas,
01:53
So I dedicated myself
to working with him on those things,
to working with him on those things,
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lai acu kontakta mums būtu
arvien vairāk un vairāk.
arvien vairāk un vairāk.
01:57
so we would have more and more
eye-contact moments.
eye-contact moments.
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Mēs stundām ilgi spēlējām sunīšus
02:03
We would spend hours and hours playing tag
with his older sister, Alexia,
with his older sister, Alexia,
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ar viņa vecāko māsu Aleksiju,
un brīdī, kad saucām: „Es tevi noķēru!”
02:10
and when we said: "I caught you!"
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02:14
he would look around for us,
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viņš meklēja mūsu skatienu,
un tajos brīžos es jutu, ka viņš dzīvo.
02:16
and at that moment,
I could feel he was alive.
I could feel he was alive.
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Mēs pavadījām arī
rekordgaras stundas baseinā.
rekordgaras stundas baseinā.
02:25
We also hold a record for hours spent
in a swimming pool.
in a swimming pool.
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Ivanam vienmēr ļoti paticis ūdens.
02:31
Ivan always had a passion for water.
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02:35
I remember when he was two and a half,
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Atceros, kad viņam bija divarpus gadi,
kādā ļoti lietainā ziemas dienā,
02:39
on a rainy winter day,
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02:43
I was taking him to an indoor pool,
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es vedu viņu uz baseinu,
02:45
because even on rainy days
we'd go swimming.
we'd go swimming.
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jo pat tādās dienās viņš negribēja
baseina apmeklējumu izlaist.
baseina apmeklējumu izlaist.
Bijām uz šosejas,
02:49
We were on the highway,
and I took the wrong exit.
and I took the wrong exit.
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un es aizbraucu nepareizi.
02:54
He burst into tears and cried
inconsolably, nonstop,
inconsolably, nonstop,
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Viņš sāk raudāt, nebija nomierināms,
raudas nerimās,
līdz biju atpakaļ uz pareizā ceļa,
līdz biju atpakaļ uz pareizā ceļa,
02:58
until I turned back.
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tikai tad viņš nomierinājās.
03:00
Only then did he calm down.
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Kā gan iespējams,
03:03
How was it possible
that a two and a half year old
that a two and a half year old
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ka divarpus gadu vecumā
viņš nereaģēja pat uz savu vārdu,
viņš nereaģēja pat uz savu vārdu,
03:07
didn't respond to his own name,
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taču šajā lietū un miglā,
kurā es neko nevarēju saskatīt,
kurā es neko nevarēju saskatīt,
03:09
yet in the middle of the rain and fog,
where I couldn't see anything,
where I couldn't see anything,
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03:13
he knew the exact route?
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spēja precīzi atpazīt ceļu?
Tad sapratu, ka Ivanam
ir izcila redzes atmiņa
ir izcila redzes atmiņa
03:21
That's when I realized that Ivan
had an exceptional visual memory,
had an exceptional visual memory,
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un ka tā man kļūs par ieejas durvīm.
03:25
and that that would be my way in.
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Tā es sāku visu fotogrāfēt
03:29
So I started taking
pictures of everything,
pictures of everything,
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un mācīt viņam par dzīvi šādi,
03:32
and teaching him what life was like,
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parādot to bildi pa bildei.
03:35
showing it to him, picture by picture.
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03:39
Even now, it's the way Ivan communicates
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Un tas joprojām ir veids,
kā Ivans mums stāsta,
kā Ivans mums stāsta,
03:44
what he wants,
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ko vēlas, kas viņam vajadzīgs
03:46
what he needs
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un arī ko viņš jūt.
03:48
and also what he feels.
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Taču tas nebija tikai Ivana skatiens.
03:54
But it wasn't just
Ivan's eye contact that mattered.
Ivan's eye contact that mattered.
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Tie bija arī visu pārējo skatieni.
03:58
Everyone else's did, too.
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04:02
How could I make people see
not only his autism,
not only his autism,
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Kā panākt,
ka cilvēki ierauga ne tikai viņa autismu,
bet arī viņu pašu
04:06
but see him the person
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04:09
and everything he can give;
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un visu to, ko viņš var dot?
04:12
everything he can do;
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Visu to, ko viņš spēj izdarīt?
04:15
the things he likes and doesn't like,
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To, kas viņam patīk un kas ne,
04:18
just like any one of us?
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gluži kā ikvienam no mums?
04:21
But for that, I also had
to give of myself.
to give of myself.
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Taču, lai tas notiktu,
arī man bija kaut kas jāizdara.
arī man bija kaut kas jāizdara.
Man bija jārod sevī spēks viņu atlaist,
04:25
I had to have the strength to let him go,
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un tas man nācās ārkārtīgi grūti.
04:28
which was extremely difficult.
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Ivanam bija 11 gadu,
04:33
Ivan was 11 years old,
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04:35
and he went for treatment
in a neighborhood near our house.
in a neighborhood near our house.
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un viņa terapeitiskās nodarbības
notika netālu no mājas, blakus kvartālā.
notika netālu no mājas, blakus kvartālā.
04:40
One afternoon,
while I was waiting for him,
while I was waiting for him,
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Kādu vakaru, viņu gaidot,
es iegāju augļu un dārzeņu veikalā,
es iegāju augļu un dārzeņu veikalā,
04:44
I went into a greengrocer,
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04:46
a typical neighborhood store
with a little bit of everything.
with a little bit of everything.
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tipiskā kvartāla veikaliņā,
kurā var atrast mazliet no visa.
kurā var atrast mazliet no visa.
Iepērkoties sāku runāt ar Hosē,
veikala īpašnieku.
veikala īpašnieku.
04:50
While doing the shopping,
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04:52
I started talking to Jose, the owner.
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04:56
I told him about Ivan,
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Pastāstīju viņam par Ivanam, viņa autismu
04:59
that he had autism,
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un to, ka vēlos, lai viņš iemācītos
iet pa ielu viens pats,
iet pa ielu viens pats,
05:01
and that I wanted him to learn
to walk down the street by himself,
to walk down the street by himself,
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05:05
without anyone holding his hand.
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bez neviena, kas viņu vestu pie rokas.
Un es saņēmos Hosē pajautāt,
05:08
So I decided to ask Jose
if Thursdays around 2pm,
if Thursdays around 2pm,
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vai ceturtdienās, divos pēcpusdienā,
Ivans varētu nākt un palīdzēt viņam
sakārtot ūdens plauktus,
sakārtot ūdens plauktus,
05:13
Ivan could come and help him arrange
the water bottles on the shelves,
the water bottles on the shelves,
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jo viņam ļoti patīk kārtot,
05:17
because he loved to organize things.
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05:19
And as a reward, he could buy
some chocolate cookies,
some chocolate cookies,
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un par atlīdzību viņš varētu
nopirkt šokolādes cepumus,
nopirkt šokolādes cepumus,
05:23
which were his favorite.
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savus vismīļākos cepumus.
Hosē tūlīt pat atbildēja, ka jā.
05:27
He said "yes" right away.
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05:30
So that's how it went for a year:
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Un tā tas gāja veselu gadu –
05:34
Ivan would go to Jose's greengrocer,
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Ivans devās uz Hosē veikaliņu,
05:37
help him arrange the shelves
of water bottles
of water bottles
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palīdzēja viņam sakārtot
plauktos ūdens pudeles,
plauktos ūdens pudeles,
etiķetes perfekti pagrieztas
05:40
with the labels perfectly
lined up on the same side,
lined up on the same side,
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ar milimetra precizitāti uz vienu pusi.
05:46
and he would leave happy
with his chocolate cookies.
with his chocolate cookies.
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Un mājās Ivans devās laimīgs,
ar saviem šokolādes cepumiem.
05:56
Jose is not an expert in autism.
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Hosē nav autisma eksperts.
06:01
There is no need to be an expert
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Nebūt nav jābūt ekspertam,
06:05
nor do anything heroic to include someone.
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ne arī jāveic kādi varoņdarbi,
lai iekļautu otru cilvēku.
lai iekļautu otru cilvēku.
06:12
We just need to be there --
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Mums vienkārši jābūt...
(Aplausi)
06:14
(Applause)
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06:22
(Applause ends)
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Tieši tā, nekādu varoņdarbu.
06:25
Really, no heroic deed --
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06:28
we simply need to be close.
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Mums vienkārši jābūt blakus.
06:33
And if we are afraid of something
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Un, ja mūs kaut kas biedē
06:36
or we don't understand something,
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vai kaut ko nesaprotam, ir jājautā;
06:38
we need to ask.
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jābūt zinātkāriem,
06:41
Let's be curious
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06:44
but never indifferent.
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bet nekad ne vienaldzīgiem.
06:50
Let's have the courage
to look each other in the eye,
to look each other in the eye,
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Uzdrošināsimies
ieskatīties viens otram acīs,
ieskatīties viens otram acīs,
jo ar savu skatienu
06:56
because by looking,
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varam kādam citam atvērt veselu pasauli.
06:58
we can open a whole world to someone else.
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(Aplausi)
07:03
(Applause)
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07:05
(Cheers)
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ABOUT THE SPEAKER
Carina Morillo - Autism advocateCarina Morillo is an advocate for the social inclusion of people with autism.
Why you should listen
Carina Morillo is a founding member and president of Fundación Brincar, a non-profit organization in Argentina that has worked since 2010 for a better quality of life of people with autism and their families.
Morillo started Fundación Brincar -- inspired by her son Ivan, who is currently 16 years old and has autism -- because she strongly believes that although life with autism can be challenging, her family and others like it have the right to be happy. In spite of its high prevalence, most people still don't know what autism is about or how to help someone with autism. The foundation offers support services and training to families and professionals, community awareness programs and art and skills training for children, youth and adults on the autism spectrum. Brincar has trained more than 15,000 professionals and families, and it currently offers support services to more than 3,000 families throughout Argentina. The foundation's free virtual library monthly reaches 400,000 people per month throughout Latin America and Spain. Brincar is also founding member of the Argentina Network of Autism, and has become one of the leading autism references for both families, health professionals and teachers in Argentina and Latin America.
Morillo is actively working on the creation of an adult life platform for living with autism. Like many parents, her main concern is who will take care of her son during his adult life. Around one-third of people with autism remain nonverbal, and one-third have an intellectual disability, requiring 24/7 support throughout their life. Existing facilities and services in Argentina and Latin America are limited to school age, with no residence or occupation solutions for anyone older than 18.
Morillo has been awarded the 2016 US Ambassador in Argentina Entrepreneur Prize and the 2014 Argentine Solidarity Prize. In April 2017, Fundación Brincar was declared of Social Interest by the Congress of the City of Buenos Aires for its open community services. Morillo holds a BS in Business Administration degree of Babson College.
Carina Morillo | Speaker | TED.com