TEDMED 2016
Carolyn Jones: A tribute to nurses
Carolyn Jones: Homenaxe á enfermaría
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Carolyn Jones pasou cinco anos entrevistando, fotografando e filmando enfermeiras e enfermeiros por toda América, viaxando a lugares onde se loita con algúns dos problemas de saúde pública máis graves da nación. Ela comparte historias persoais de inquebrantable dedicación nesta homenaxe aos heroes cotiáns que traballan na vangarda da atención sanitaria.
Carolyn Jones - Photographic ethnographer
Carolyn Jones creates projects that point our attention towards issues of global concern. Full bio
Carolyn Jones creates projects that point our attention towards issues of global concern. Full bio
Double-click the English transcript below to play the video.
00:12
As patients,
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Como pacientes,
00:13
we usually remember
the names of our doctors,
the names of our doctors,
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adoitamos lembrar
os nomes dos nosos médicos,
os nomes dos nosos médicos,
pero a miúdo esquecemos
os nomes dos nosos enfermeiros.
os nomes dos nosos enfermeiros.
00:17
but often we forget
the names of our nurses.
the names of our nurses.
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00:21
I remember one.
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Eu recordo unha.
00:23
I had breast cancer a few years ago,
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Hai uns anos, tiven cancro de mama,
e dalgunha maneira
logrei superar as operacións
logrei superar as operacións
00:25
and somehow I managed
to get through the surgeries
to get through the surgeries
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00:29
and the beginning
of the treatment just fine.
of the treatment just fine.
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e o comezo do tratamento bastante ben.
00:31
I could hide what was going on.
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Podía ocultar o que estaba a ocorrer.
00:34
Everybody didn't really have to know.
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Ninguén tiña por que sabelo.
00:36
I could walk my daughter to school,
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Podía levar a miña filla ao colexio,
00:38
I could go out to dinner with my husband;
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podía saír cear co meu marido;
00:40
I could fool people.
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podía enganar a xente.
00:42
But then my chemo was scheduled to begin
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Pero logo chegou a quimio
e iso aterrábame
00:45
and that terrified me
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00:46
because I knew that I was going to lose
every single hair on my body
every single hair on my body
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porque sabía que ía perder
todo o pelo do corpo
todo o pelo do corpo
polo tipo de quimio que ía recibir.
00:51
because of the kind of chemo
that I was going to have.
that I was going to have.
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00:54
I wasn't going to be able
to pretend anymore
to pretend anymore
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Xa non podería seguir finxindo
que todo estaba normal.
00:56
as though everything was normal.
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00:59
I was scared.
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Estaba asustada.
01:00
I knew what it felt like to have
everybody treating me with kid gloves,
everybody treating me with kid gloves,
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Sabía o que era
que todos te tratasen con pinzas
que todos te tratasen con pinzas
e simplemente quería sentirme normal.
01:04
and I just wanted to feel normal.
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Tiña un catéter no peito.
01:06
I had a port installed in my chest.
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Fun ao meu primeiro día de quimioterapia,
01:08
I went to my first day of chemotherapy,
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e estaba moi mal de ánimo.
01:11
and I was an emotional wreck.
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01:14
My nurse, Joanne, walked in the door,
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A miña enfermeira, Joanne,
entrou pola porta,
entrou pola porta,
e cada óso do meu corpo estábame pedindo
01:17
and every bone in my body was telling
me to get up out of that chair
me to get up out of that chair
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que me levantase daquela cadeira e fuxira.
01:21
and take for the hills.
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01:22
But Joanne looked at me and talked
to me like we were old friends.
to me like we were old friends.
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Pero Joanne miroume e faloume
como se fósemos vellas amigas.
como se fósemos vellas amigas.
01:27
And then she asked me,
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E logo preguntoume:
"Onde fixeches as mechas?"
01:28
"Where'd you get your highlights done?"
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01:30
(Laughter)
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(Risas)
01:31
And I was like, are you kidding me?
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Pensei: "Estás de broma?"
01:33
You're going to talk to me about my hair
when I'm on the verge of losing it?
when I'm on the verge of losing it?
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"Fálasme do meu cabelo
cando estou a punto de perdelo?"
cando estou a punto de perdelo?"
01:38
I was kind of angry,
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Enfadeime un pouco
01:40
and I said, "Really? Hair?"
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e díxenlle: "En serio?
Estasme preguntando polo pelo?"
Estasme preguntando polo pelo?"
01:43
And with a shrug
of her shoulders she said,
of her shoulders she said,
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E encollendo os ombreiros díxome:
01:46
"It's gonna grow back."
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"Volverá medrar."
01:48
And in that moment she said
the one thing I had overlooked,
the one thing I had overlooked,
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Nese momento díxome a única cousa
que eu pasara por alto:
que eu pasara por alto:
01:51
and that was that at some point,
my life would get back to normal.
my life would get back to normal.
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que, algún día,
a miña vida volvería á normalidade.
a miña vida volvería á normalidade.
Ela críao realmente.
01:55
She really believed that.
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Así que eu tamén o crin.
01:57
And so I believed it, too.
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01:59
Now, worrying about losing your hair
when you're fighting cancer
when you're fighting cancer
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Preocuparse pola perda do cabelo
cando un loita contra o cancro
cando un loita contra o cancro
poder parecer unha parvada ao principio,
02:04
may seem silly at first,
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02:05
but it's not just that you're worried
about how you're going to look.
about how you're going to look.
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pero non é que un
só se preocupe polo aspecto,
só se preocupe polo aspecto,
senón porque todo o mundo
te tratará con demasiado coidado.
te tratará con demasiado coidado.
02:10
It's that you're worried that everybody's
going to treat you so carefully.
going to treat you so carefully.
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02:14
Joanne made me feel normal
for the first time in six months.
for the first time in six months.
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Joanne fíxome sentir normal
por primeira vez en seis meses.
por primeira vez en seis meses.
02:18
We talked about her boyfriends,
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Falamos dos seus mozos,
02:20
we talked about looking
for apartments in New York City,
for apartments in New York City,
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de buscar apartamento en Nova York,
02:22
and we talked about my reaction
to the chemotherapy --
to the chemotherapy --
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e da miña reacción á quimioterapia.
02:25
all kind of mixed in together.
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Todo ao mesmo tempo.
02:28
And I always wondered,
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Eu sempre me preguntaba
02:30
how did she so instinctively
know just how to talk to me?
know just how to talk to me?
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"como soubo tan instintivamente
como falarme?"
como falarme?"
02:35
Joanne Staha and my admiration for her
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Joanne Staha
e a miña admiración cara a ela
e a miña admiración cara a ela
02:38
marked the beginning of my journey
into the world of nurses.
into the world of nurses.
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marcaron o comezo da miña viaxe
no mundo da enfermaría.
no mundo da enfermaría.
02:43
A few years later,
I was asked to do a project
I was asked to do a project
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Uns anos despois,
pedíronme que fixera un proxecto
pedíronme que fixera un proxecto
02:45
that would celebrate
the work that nurses do.
the work that nurses do.
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para celebrar o traballo
realizado polos enfermeiros.
realizado polos enfermeiros.
02:49
I started with Joanne,
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Empecei con Joanne
e coñecín a máis
de cen enfermeiros de todo o país.
de cen enfermeiros de todo o país.
02:50
and I met over 100 nurses
across the country.
across the country.
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02:54
I spent five years interviewing,
photographing and filming nurses
photographing and filming nurses
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Pasei cinco anos entrevistando,
fotografando e filmando enfermeiros
fotografando e filmando enfermeiros
02:59
for a book and a documentary film.
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para un libro e un documental.
03:02
With my team,
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Planifiquei co meu equipo
unha viaxe por Estados Unidos
unha viaxe por Estados Unidos
03:03
we mapped a trip across America
that would take us to places
that would take us to places
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que nos levaría aos lugares que afrontan
03:07
dealing with some of the biggest
public health issues facing our nation --
public health issues facing our nation --
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algúns dos problemas máis grandes
de saúde pública da nosa nación:
de saúde pública da nosa nación:
o envellecemento, a guerra,
a pobreza, a prisión...
a pobreza, a prisión...
03:12
aging, war, poverty, prisons.
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03:16
And then we went places
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E despois fomos a lugares
03:18
where we would find
the largest concentration of patients
the largest concentration of patients
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onde encontramos a maior concentración
de pacientes que afrontan eses problemas.
03:22
dealing with those issues.
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03:24
Then we asked hospitals and facilities
to nominate nurses
to nominate nurses
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Logo pedímoslles aos hospitais e a centros
que nomearan os enfermeiros
que nomearan os enfermeiros
03:28
who would best represent them.
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que mellor os representasen.
03:30
One of the first nurses I met
was Bridget Kumbella.
was Bridget Kumbella.
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Unha das primeiras enfermeiras que coñecín
foi Bridget Kumbella.
foi Bridget Kumbella.
03:34
Bridget was born in Cameroon,
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Bridget naceu en Camerún,
é a maior de catro irmáns.
03:35
the oldest of four children.
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03:38
Her father was at work
when he had fallen from the fourth floor
when he had fallen from the fourth floor
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Seu pai estaba traballando
cando caeu dun cuarto piso
cando caeu dun cuarto piso
03:42
and really hurt his back.
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e lesionou gravemente o lombo.
03:44
And he talked a lot about what it was like
to be flat on your back
to be flat on your back
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El falou moito do que era
estar deitado boca arriba
e non recibir o tratamento necesario.
e non recibir o tratamento necesario.
03:48
and not get the kind
of care that you need.
of care that you need.
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03:51
And that propelled Bridget
to go into the profession of nursing.
to go into the profession of nursing.
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Iso impulsou a Bridget cara á enfermaría.
03:56
Now, as a nurse in the Bronx,
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Agora, como enfermeira no Bronx,
03:57
she has a really diverse group
of patients that she cares for,
of patients that she cares for,
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coida un grupo moi diverso de pacientes
de tódalas clases e relixións.
04:01
from all walks of life,
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04:03
and from all different religions.
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04:05
And she's devoted her career
to understanding the impact
to understanding the impact
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Dedicou a súa carreira
a comprender o impacto
a comprender o impacto
das diferenzas culturais
en materia de saúde.
en materia de saúde.
04:09
of our cultural differences
when it comes to our health.
when it comes to our health.
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Ela falounos dun paciente,
04:14
She spoke of a patient --
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04:15
a Native American patient that she had --
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un paciente aborixe,
que quería ingresar na UCI
cunha manchea de plumas
cunha manchea de plumas
04:18
that wanted to bring
a bunch of feathers into the ICU.
a bunch of feathers into the ICU.
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Así atopaba el o consolo espiritual.
04:23
That's how he found spiritual comfort.
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04:26
And she spoke of advocating for him
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Contounos como o apoiou
04:28
and said that patients come
from all different religions
from all different religions
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e dixo que os pacientes
teñen relixións diferentes
teñen relixións diferentes
04:31
and use all different kinds
of objects for comfort;
of objects for comfort;
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e que usan todo tipo de obxectos
como consolo espiritual;
como consolo espiritual;
04:35
whether it's a holy rosary
or a symbolic feather,
or a symbolic feather,
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e sexa un santo rosario
ou unha pluma simbólica,
ou unha pluma simbólica,
todo debe apoiarse.
04:38
it all needs to be supported.
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04:41
This is Jason Short.
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Este é Jason Short.
É enfermeiro de asistencia domiciliaria
nos montes Apalaches,
nos montes Apalaches,
04:43
Jason is a home health nurse
in the Appalachian mountains,
in the Appalachian mountains,
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e o seu pai tiña unha gasolineira
e un taller cando el era pequeno.
e un taller cando el era pequeno.
04:46
and his dad had a gas station
and a repair shop when he was growing up.
and a repair shop when he was growing up.
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Así que ocupábase de coches na comunidade
na que agora traballa de enfermeiro.
na que agora traballa de enfermeiro.
04:50
So he worked on cars in the community
that he now serves as a nurse.
that he now serves as a nurse.
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Cando estaba na universidade,
04:55
When he was in college,
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04:56
it was just not macho at all
to become a nurse,
to become a nurse,
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non era moi masculino ser enfermeiro,
así que evitou este traballo durante anos.
05:00
so he avoided it for years.
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05:02
He drove trucks for a little while,
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Durante un tempo foi camioneiro,
05:04
but his life path was always
pulling him back to nursing.
pulling him back to nursing.
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pero os camiños da vida
levárono de novo á enfermaría.
levárono de novo á enfermaría.
Como enfermeiro nos Apalaches,
05:10
As a nurse in the Appalachian mountains,
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05:12
Jason goes places
that an ambulance can't even get to.
that an ambulance can't even get to.
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Jason vai a lugares aos que nin sequera
unha ambulancia pode chegar.
unha ambulancia pode chegar.
05:16
In this photograph,
he's standing in what used to be a road.
he's standing in what used to be a road.
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Nesta foto, está posando
no medio do que antes era un camiño.
no medio do que antes era un camiño.
A minería de montaña inundou ese camiño
05:20
Top of the mountain mining
flooded that road,
flooded that road,
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e a única maneira que ten Jason
de chegar ao paciente
de chegar ao paciente
05:22
and now the only way
for Jason to get to the patient
for Jason to get to the patient
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que vive nesa casa con pneumoconiose
05:26
living in that house
with black lung disease
with black lung disease
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é conducir o seu todoterreo
a contracorrente por ese arroio.
a contracorrente por ese arroio.
05:29
is to drive his SUV
against the current up that creek.
against the current up that creek.
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05:34
The day I was with him,
we ripped the front fender off the car.
we ripped the front fender off the car.
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Cando fun con el, arrancamos
o parachoques dianteiro do coche.
o parachoques dianteiro do coche.
Á mañá seguinte ergueuse,
05:38
The next morning he got up,
put the car on the lift,
put the car on the lift,
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puxo o coche na foxa,
reparou o parachoques
reparou o parachoques
05:41
fixed the fender,
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e despois foi ver o seu próximo paciente.
05:42
and then headed out
to meet his next patient.
to meet his next patient.
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Fun testemuña de como Jason
coidou a ese señor
coidou a ese señor
05:45
I witnessed Jason
caring for this gentleman
caring for this gentleman
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05:48
with such enormous compassion,
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cunha compaixón enorme,
05:51
and I was struck again by how intimate
the work of nursing really is.
the work of nursing really is.
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e sorprendeume de novo o íntimo
do traballo da enfermaría.
do traballo da enfermaría.
05:58
When I met Brian McMillion, he was raw.
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Cando coñecín a Brian McMillion,
era un novato.
era un novato.
06:01
He had just come back from a deployment
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Acababa de volver dunha misión
06:03
and he hadn't really settled back in
to life in San Diego yet.
to life in San Diego yet.
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e aínda non se acomodara de novo
á vida en San Diego.
á vida en San Diego.
06:08
He talked about his experience
of being a nurse in Germany
of being a nurse in Germany
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Falou da súa experiencia
como enfermeiro en Alemaña,
como enfermeiro en Alemaña,
06:11
and taking care of the soldiers
coming right off the battlefield.
coming right off the battlefield.
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e de como coidou os soldados
que regresaban de combater.
que regresaban de combater.
A miúdo, el era a primeira persoa que vían
06:15
Very often, he would be
the first person they would see
the first person they would see
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ao abriren os ollos no hospital.
06:19
when they opened
their eyes in the hospital.
their eyes in the hospital.
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06:22
And they would look at him
as they were lying there,
as they were lying there,
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Na cama e con membros amputados,
o primeiro que lle dicían era:
o primeiro que lle dicían era:
06:25
missing limbs,
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06:26
and the first thing they would say is,
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"Cando podo volver?
Deixei os meus compañeiros alí."
Deixei os meus compañeiros alí."
06:29
"When can I go back?
I left my brothers out there."
I left my brothers out there."
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06:34
And Brian would have to say,
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E Brian dicíalles:
"Non vas ir a ningures.
Xa fixeches abondo, meu."
Xa fixeches abondo, meu."
06:35
"You're not going anywhere.
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06:37
You've already given enough, brother."
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06:40
Brian is both a nurse and a soldier
who's seen combat.
who's seen combat.
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Brian é a vez un enfermeiro
e un soldado que estivo en combate.
e un soldado que estivo en combate.
Está nunha posición privilexiada
06:45
So that puts him in a unique position
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06:47
to be able to relate to and help heal
the veterans in his care.
the veterans in his care.
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que lle permite empatizar
e axudar a curar os veteranos que atende.
e axudar a curar os veteranos que atende.
Esta é a irmá Stephen.
06:53
This is Sister Stephen,
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06:55
and she runs a nursing home
in Wisconsin called Villa Loretto.
in Wisconsin called Villa Loretto.
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Ela dirixe un fogar de anciáns
chamado Villa Loretto en Wisconsin.
chamado Villa Loretto en Wisconsin.
06:59
And the entire circle of life
can be found under her roof.
can be found under her roof.
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E baixo o seu teito
pódese encontrar todo tipo de vida.
pódese encontrar todo tipo de vida.
07:03
She grew up wishing they lived on a farm,
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Medrou desexando vivir nunha granxa,
07:06
so given the opportunity
to adopt local farm animals,
to adopt local farm animals,
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así que ao ter a oportunidade
de adoptar animais de granxa,
de adoptar animais de granxa,
acolleunos entusiasmada.
07:11
she enthusiastically brings them in.
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Na primavera, eses animais teñen crías.
07:14
And in the springtime,
those animals have babies.
those animals have babies.
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E a irmá Stephen usa eses parrulos,
cabuxas e años
cabuxas e años
07:17
And Sister Stephen uses
those baby ducks, goats and lambs
those baby ducks, goats and lambs
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como zooterapia para os residentes
de Villa Loretto
de Villa Loretto
07:22
as animal therapy
for the residents at Villa Loretto
for the residents at Villa Loretto
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que ás veces non poden recordar
os seus propios nomes,
os seus propios nomes,
07:27
who sometimes can't
remember their own name,
remember their own name,
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pero que se alegran de termar
coas súas mans dun añiño.
coas súas mans dun añiño.
07:30
but they do rejoice
in the holding of a baby lamb.
in the holding of a baby lamb.
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O día que estiven coa irmá Stephen,
07:35
The day I was with Sister Stephen,
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07:37
I needed to take her away
from Villa Loretto
from Villa Loretto
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tiña que sacala de Villa Loretto
para rodar parte da súa historia.
para rodar parte da súa historia.
07:39
to film part of her story.
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E antes de marcharmos
entrou no cuarto dun paciente terminal.
entrou no cuarto dun paciente terminal.
07:41
And before we left,
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07:42
she went into the room of a dying patient.
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07:46
And she leaned over and she said,
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Inclinouse e dixo:
"Teño que marchar durante o día,
07:48
"I have to go away for the day,
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pero se Xesús te chama,
07:51
but if Jesus calls you,
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07:53
you go.
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ti vaite.
07:54
You go straight home to Jesus."
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Vaite directo á casa de Xesús".
07:57
I was standing there and thinking
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Quedeime alí, pensando
que era a primeira vez na miña vida
07:59
it was the first time in my life
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08:01
I witnessed that you could show
someone you love them completely
someone you love them completely
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que fun testemuña de que se lle podía
mostrar amor incondicional a alguén
mostrar amor incondicional a alguén
deixándoo ir.
08:06
by letting go.
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Non temos que aferrarnos tanto.
08:08
We don't have to hold on so tightly.
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08:11
I saw more life rolled up at Villa Loretto
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Vin máis vida en Villa Loretto
08:15
than I have ever seen at any other time
at any other place in my life.
at any other place in my life.
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ca en ningún outro momento
e en ningún outro lugar na miña vida.
e en ningún outro lugar na miña vida.
08:21
We live in a complicated time
when it comes to our health care.
when it comes to our health care.
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Vivimos tempos complicados
no que á saúde respecta.
no que á saúde respecta.
08:25
It's easy to lose sight
of the need for quality of life,
of the need for quality of life,
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É fácil perder de vista a necesidade
de calidade de vida
fronte a cantidade de vida.
fronte a cantidade de vida.
08:29
not just quantity of life.
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08:32
As new life-saving
technologies are created,
technologies are created,
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Conforme se creen novas tecnoloxías
que salven vidas,
que salven vidas,
08:35
we're going to have really
complicated decisions to make.
complicated decisions to make.
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teremos que tomar
máis decisións complicadas.
máis decisións complicadas.
08:39
These technologies often save lives,
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Estas tecnoloxías a miúdo salvan vidas,
08:42
but they can also prolong pain
and the dying process.
and the dying process.
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pero tamén poden prolongar
a dor e a agonía da morte.
a dor e a agonía da morte.
Como se supón que lidaremos con isto?
08:47
How in the world are we supposed
to navigate these waters?
to navigate these waters?
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08:50
We're going to need
all the help we can get.
all the help we can get.
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Necesitaremos toda a axuda posible.
08:53
Nurses have a really unique
relationship with us
relationship with us
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Os enfermeiros teñen
unha relación única con nós
unha relación única con nós
08:57
because of the time spent at bedside.
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porque pasan tempo a carón da nosa cama.
Durante ese tempo créase
unha certa intimidade emocional.
unha certa intimidade emocional.
09:00
During that time,
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09:02
a kind of emotional intimacy develops.
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09:06
This past summer, on August 9,
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O pasado verán, o 9 de agosto,
meu pai morreu dun ataque ao corazón.
09:09
my father died of a heart attack.
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Miña nai estaba desfeita
09:12
My mother was devastated,
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09:14
and she couldn't imagine
her world without him in it.
her world without him in it.
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e non podía imaxinar o seu mundo sen el.
09:19
Four days later she fell,
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Catro días despois caeu, rompeu a cadeira,
09:21
she broke her hip,
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09:23
she needed surgery
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necesitaba cirurxía e atopouse
loitando pola súa propia vida.
loitando pola súa propia vida.
09:24
and she found herself
fighting for her own life.
fighting for her own life.
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09:28
Once again I found myself
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Unha vez máis encontreime
09:30
on the receiving end
of the care of nurses --
of the care of nurses --
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recibindo o coidado dos enfermeiros...
09:33
this time for my mom.
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esta vez para a miña nai.
09:36
My brother and my sister and I
stayed by her side
stayed by her side
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Meu irmán, miña irmá e mais eu
quedamos ao seu lado
quedamos ao seu lado
09:38
for the next three days in the ICU.
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os tres seguintes días na UCI.
09:41
And as we tried
to make the right decisions
to make the right decisions
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Mentres tratábamos de tomar
as decisións correctas
as decisións correctas
09:45
and follow my mother's wishes,
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e cumprir os desexos da miña nai,
descubrimos que dependíamos
dos consellos dos enfermeiros.
dos consellos dos enfermeiros.
09:47
we found that we were depending
upon the guidance of nurses.
upon the guidance of nurses.
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09:52
And once again,
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E unha vez máis,
09:53
they didn't let us down.
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non nos defraudaron.
Tiveron unha visión incrible
09:56
They had an amazing insight
in terms of how to care for my mom
in terms of how to care for my mom
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sobre como coidar a miña nai
nos seus últimos catro días de vida.
nos seus últimos catro días de vida.
10:01
in the last four days of her life.
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10:03
They brought her comfort
and relief from pain.
and relief from pain.
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Ofrecéronlle consolo, aliviáronlle a dor.
Souberon animarnos a miña irmá e a min
para poñerlle un camisón bonito a mamá,
para poñerlle un camisón bonito a mamá,
10:08
They knew to encourage my sister and I
to put a pretty nightgown on my mom,
to put a pretty nightgown on my mom,
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moito despois de que a ela
xa non lle importara,
xa non lle importara,
10:13
long after it mattered to her,
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10:15
but it sure meant a lot to us.
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pero si, e moito, a nós.
10:19
And they knew to come and wake me up
just in time for my mom's last breath.
just in time for my mom's last breath.
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Souberon espertarme xusto a tempo
para o último alento de miña nai.
para o último alento de miña nai.
E logo souberon canto tempo
deixarme no cuarto con ela
deixarme no cuarto con ela
10:25
And then they knew
how long to leave me in the room
how long to leave me in the room
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10:28
with my mother after she died.
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despois da súa morte.
Non teño nin idea
de como saben esas cousas,
de como saben esas cousas,
10:30
I have no idea how they know these things,
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pero si sei que lles estou
eternamente agradecida
eternamente agradecida
10:34
but I do know that I am eternally grateful
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10:37
that they've guided me once again.
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por guiarme unha vez máis.
Moitas grazas.
10:40
Thank you so very much.
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10:42
(Applause)
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(Aplausos)
ABOUT THE SPEAKER
Carolyn Jones - Photographic ethnographerCarolyn Jones creates projects that point our attention towards issues of global concern.
Why you should listen
Best known for her socially proactive photographs and documentary films, Carolyn Jones creates projects that point our attention towards issues of global concern. From people "living positively" with AIDS to women artisans supporting entire communities and nurses on the front lines of our health care system, Carolyn Jones has devoted her career to celebrating invisible populations and breaking down barriers.
Jones has spent the past five years interviewing more than 150 nurses from every corner of the US in an effort to better understand the role of nurses in this country's healthcare system. She published the critically-acclaimed book The American Nurse: Photographs and Interviews by Carolyn Jones, for which she was interviewed on PBS NewsHour and featured in the New York Times, the Washington Post and USA Today. She directed and executive-produced the follow-up documentary film The American Nurse: Healing America, which was released in theaters nationwide and was an official selection of the 2015 American Film Showcase, a cultural diplomacy program of the US Department of State.
Jones has spent her career focused on telling personal stories, and her first introduction to nursing was through a very personal experience of her own, when it was a nurse who helped her get through breast cancer. That experience stuck with her, so when she started working on the American Nurse Project in 2011, she was determined to paint a rich and dynamic portrait of the profession. The goal was to cover as much territory as possible, with the hope that along the way she would capture stories touching on the kinds of issues that nurses are dealing with in every corner of the country. The project explores the American experiences of health care, poverty, childbirth, war, imprisonment and the end of life through the lens of nursing.
Prior to The American Nurse, her most widely acclaimed book, Living Proof: Courage in the Face of AIDS, was published by Abbeville Press and was accompanied by shows in Tokyo, Berlin, the USA, and at the United Nations World AIDS Conference. In addition to her multiple exhibitions, book and magazine publications, Jones has collaborated on projects with Oxygen Media, PBS and the Girl Scouts of the USA. She founded the non-profit 100 People Foundation for which she travels the world telling stories that celebrate our global neighbors. As a lecturer, Jones has spoken at conferences, universities and events around the globe. In 2012 she was honored as one of 50 "Everyday Heroes" in the book of that title for her work with the 100 People Foundation.
Jones' career was punctuated by two brushes with death: first, running out of gas in the Sahara as a racecar driver, and second, a breast cancer diagnosis. Her newest project, the forthcoming documentary Defining Hope, is the culmination of a journey investigating how we can make better end-of-life choices.
Carolyn Jones | Speaker | TED.com