TEDxDelft
Mileha Soneji: Simple hacks for life with Parkinson's
Mileha Sonedži (Mileha Soneji): Jednostavni saveti za život sa Parkinsonovom bolešću
Filmed:
Readability: 3.6
1,033,316 views
Jednostavna rešenja su ponekad najbolja, čak i kada imate posla sa nečim što je komplikovano, poput Parkinsonove bolesti. U ovom nadahnutom govoru, Mileha Sonedži deli pristupačna rešenja koja svakodnevne poslove onih koji žive sa ovom bolešću čine lakšim. "Nije uvek stvar u tehnologiji", kaže ona. "Potrebna su nam rešenja fokusirana na ljude."
Mileha Soneji - Product designer
Mileha Soneji believes that having empathy and being able to put yourself in another person's shoes is what makes for great design. Full bio
Mileha Soneji believes that having empathy and being able to put yourself in another person's shoes is what makes for great design. Full bio
Double-click the English transcript below to play the video.
00:12
In India, we have these huge families.
0
800
3016
U Indiji imamo ogromne porodice.
00:15
I bet a lot of you all
must have heard about it.
must have heard about it.
1
3840
2576
Kladim se da ste svi čuli za njih.
00:18
Which means that there are
a lot of family events.
a lot of family events.
2
6440
2840
To znači da imamo
mnogo porodičnih događaja.
mnogo porodičnih događaja.
00:21
So as a child, my parents
used to drag me to these family events.
used to drag me to these family events.
3
9840
3880
Kao dete, roditelji su me vukli
na ove porodične događaje.
na ove porodične događaje.
00:26
But the one thing
that I always looked forward to
that I always looked forward to
4
14360
3016
Ali najviše sam se radovala
00:29
was playing around with my cousins.
5
17400
2040
igranju sa mojim rođacima.
00:32
And there was always this one uncle
6
20160
2296
Tu je uvek bio jedan ujak
00:34
who used to be there,
7
22480
1256
koji bi bio tamo,
00:35
always ready, jumping around with us,
8
23760
1856
uvek spreman, skačući okolo s nama,
00:37
having games for us,
9
25640
1496
imao bi igre za nas,
00:39
making us kids have the time of our lives.
10
27160
2800
činio je da se mi deca ludo provodimo.
00:42
This man was extremely successful:
11
30920
2336
Ovaj čovek je bio veoma uspešan:
00:45
he was confident and powerful.
12
33280
2000
bio je samouveren i moćan.
00:47
But then I saw this hale and hearty person
deteriorate in health.
deteriorate in health.
13
35920
4400
Onda sam videla ovu čilu i srčanu osobu
kako joj se polako urušava zdravlje.
kako joj se polako urušava zdravlje.
00:53
He was diagnosed with Parkinson's.
14
41240
2280
Dijagnozirali su mu Parkinsonovu bolest.
00:56
Parkinson's is a disease that causes
degeneration of the nervous system,
degeneration of the nervous system,
15
44760
4056
To je bolest koja izaziva
degeneraciju nervnog sistema,
degeneraciju nervnog sistema,
01:00
which means that this person
who used to be independent
who used to be independent
16
48840
2976
što znači da ova osoba,
koja je bila nezavisna,
koja je bila nezavisna,
01:03
suddenly finds tasks like drinking coffee,
because of tremors, much more difficult.
because of tremors, much more difficult.
17
51840
5240
sada ima poteškoća sa aktivnostima,
poput ispijanja kafe, zbog drhtanja.
poput ispijanja kafe, zbog drhtanja.
01:09
My uncle started using a walker to walk,
18
57800
2656
Moj stric je počeo da šeta uz šetalicu,
01:12
and to take a turn,
19
60480
1216
a kako bi se okrenuo,
01:13
he literally had to take
one step at a time, like this,
one step at a time, like this,
20
61720
4056
bukvalno je morao da ide
korak po korak, ovako,
korak po korak, ovako,
01:17
and it took forever.
21
65800
1240
i to je trajalo celu večnost.
01:20
So this person, who used to be
the center of attention
the center of attention
22
68240
3176
Ova osoba koja je bila u centru pažnje
01:23
in every family gathering,
23
71440
2056
na svakom porodičnom okupljanju,
01:25
was suddenly hiding behind people.
24
73520
2080
odjednom se krila iza ljudi.
01:28
He was hiding from the pitiful look
in people's eyes.
in people's eyes.
25
76400
3360
Krio se od sažaljivog pogleda
u očima ljudi.
u očima ljudi.
01:32
And he's not the only one in the world.
26
80440
2080
On nije jedini na svetu.
01:35
Every year, 60,000 people
are newly diagnosed with Parkinson's,
are newly diagnosed with Parkinson's,
27
83280
5496
Svake godine, kod novih 60 000 ljudi
dijagnozira se Parkinsonova bolest,
dijagnozira se Parkinsonova bolest,
01:40
and this number is only rising.
28
88800
2040
a ovaj broj samo raste.
01:44
As designers, we dream that our designs
solve these multifaceted problems,
solve these multifaceted problems,
29
92360
5416
Kao dizajneri imamo san
da svojim dizajnima
da svojim dizajnima
rešimo ove višestrane probleme,
01:49
one solution that solves it all,
30
97800
2816
jedno rešenje za sve,
01:52
but it need not always be like that.
31
100640
2280
ali ne mora uvek da bude tako.
01:55
You can also target simple problems
32
103680
2816
Možete se fokusirati
na jednostavne probleme
na jednostavne probleme
01:58
and create small solutions for them
and eventually make a big impact.
and eventually make a big impact.
33
106520
3920
i za njih stvoriti mala rešenja
i na kraju imati veliki uticaj.
i na kraju imati veliki uticaj.
02:03
So my aim here was
to not cure Parkinson's,
to not cure Parkinson's,
34
111120
3376
Moj cilj nije bio
da izlečim Parkinsonovu bolest,
da izlečim Parkinsonovu bolest,
02:06
but to make their everyday tasks
much more simple,
much more simple,
35
114520
3176
već da obolelim pojednostavim
njihove svakodnevne aktivnosti,
njihove svakodnevne aktivnosti,
02:09
and then make an impact.
36
117720
1400
i tako napravim razliku.
02:12
Well, the first thing I targeted
was tremors, right?
was tremors, right?
37
120040
3560
Prvo sam se fokusirala na drhtanje.
02:16
My uncle told me that he had stopped
drinking coffee or tea in public
drinking coffee or tea in public
38
124440
4536
Stric mi je rekao da je prestao
da pije kafu ili čaj u javnosti
da pije kafu ili čaj u javnosti
02:21
just out of embarrassment,
39
129000
1479
iz sramote,
02:23
so, well, I designed the no-spill cup.
40
131000
3480
tako da sam dizajnirala
šolju iz koje se ne prosipa.
šolju iz koje se ne prosipa.
02:27
It works just purely on its form.
41
135080
2856
Funkcioniše prosto zbog svog oblika.
02:29
The curve on top deflects the liquid
back inside every time they have tremors,
back inside every time they have tremors,
42
137960
5256
Zaobljenje na vrhu vraća tečnost
svaki put kada imaju drhtanje
svaki put kada imaju drhtanje
02:35
and this keeps the liquid inside
compared to a normal cup.
compared to a normal cup.
43
143240
2840
i ovo zadržava tečnost
u poređenju s normalnom šoljom.
u poređenju s normalnom šoljom.
02:38
But the key here is that it is not tagged
as a Parkinson's patient product.
as a Parkinson's patient product.
44
146800
4920
Ključ je u tome da nije obeležena
kao proizvod za obolele od Parkinsona.
kao proizvod za obolele od Parkinsona.
02:44
It looks like a cup that could be used
by you, me, any clumsy person,
by you, me, any clumsy person,
45
152040
4416
Izgleda kao šolja koju možete koristiti
vi, ja, bilo koja nespretna osoba
vi, ja, bilo koja nespretna osoba
02:48
and that makes it much more comforting
for them to use, to blend in.
for them to use, to blend in.
46
156480
4000
i zbog toga je za njih mnogo lakše
da je koriste, da se uklope.
da je koriste, da se uklope.
02:53
So, well, one problem solved,
47
161920
2656
Jedan problem je rešen,
02:56
many more to go.
48
164600
1240
ostaje ih još dosta.
02:58
All this while, I was interviewing him,
49
166640
2416
Tokom svega ovoga sam ga intervjuisala,
03:01
questioning him,
50
169080
1536
ispitivala ga,
03:02
and then I realized that I was getting
very superficial information,
very superficial information,
51
170640
3696
i onda sam shvatila da sam dobijala
samo površne informacije,
samo površne informacije,
03:06
or just answers to my questions.
52
174360
2816
ili samo odgovore na moja pitanja.
03:09
But I really needed to dig deeper
to get a new perspective.
to get a new perspective.
53
177200
3160
Ali zaista je trebalo da zagrebem dublje
da bih imala novu perspektivu.
da bih imala novu perspektivu.
03:13
So I thought, well,
let's observe him in his daily tasks,
let's observe him in his daily tasks,
54
181000
3736
Pomislila sam, hajde da ga posmatram
u svakodnevnim aktivnostima,
u svakodnevnim aktivnostima,
03:16
while he's eating, while he's watching TV.
55
184760
2360
dok jede, dok gleda TV.
03:19
And then, when I was actually
observing him walking to his dining table,
observing him walking to his dining table,
56
187800
4056
Dok sam ga zapravo posmatrala
dok ide do trpezarijskog stola,
dok ide do trpezarijskog stola,
03:23
it struck me, this man who finds it
so difficult to walk on flat land,
so difficult to walk on flat land,
57
191880
5176
palo mi je napamet, ovaj čovek
kome je tako teško da hoda po ravnom,
kome je tako teško da hoda po ravnom,
03:29
how does he climb a staircase?
58
197080
1720
kako se penje uz stepenice?
03:31
Because in India we do not have
a fancy rail that takes you up a staircase
a fancy rail that takes you up a staircase
59
199320
3696
Jer u Indiji nemamo prefinjeni eskalator
koji vas povede uz stepenice
koji vas povede uz stepenice
03:35
like in the developed countries.
60
203040
2016
kao u razvijenim zemljama.
03:37
One actually has to climb the stairs.
61
205080
2120
Morate da se popnete uz stepenice.
03:39
So he told me,
62
207920
1256
Rekao mi je:
03:41
"Well, let me show you how I do it."
63
209200
2000
"Hajde da ti pokažem kako to radim."
03:43
Let's take a look at what I saw.
64
211880
2040
Pogledajmo šta sam videla.
03:48
So he took really long
to reach this position,
to reach this position,
65
216960
2656
Trebalo mu je mnogo vremena
da dođe do ovog mesta,
da dođe do ovog mesta,
03:51
and then all this while, I'm thinking,
66
219640
1856
a sve to vreme, ja mislim:
03:53
"Oh my God, is he really going to do it?
67
221520
1936
"Bože, hoće li zaista uspeti?
03:55
Is he really, really going to do it
without his walker?"
without his walker?"
68
223480
2896
Hoće li zaista uspeti da to uradi
bez svoje šetalice?"
bez svoje šetalice?"
03:58
And then ...
69
226400
1200
I onda...
04:02
(Laughter)
70
230280
2320
(Smeh)
04:08
And the turns, he took them so easily.
71
236680
2160
I tako se lako okretao.
04:13
So -- shocked?
72
241240
1240
Tako da - šokirani?
04:14
Well, I was too.
73
242920
1480
I ja sam bila.
04:19
So this person who could not
walk on flat land
walk on flat land
74
247320
2976
Ova osoba koja nije mogla
da hoda po ravnoj površini
da hoda po ravnoj površini
04:22
was suddenly a pro at climbing stairs.
75
250320
2080
odjednom je bila ekspert
za penjanje uz stepenice.
za penjanje uz stepenice.
04:25
On researching this, I realized that
it's because it's a continuous motion.
it's because it's a continuous motion.
76
253720
4655
Istraživajući ovo, shvatila sam da je tako
jer se radi o kontinuiranom pokretu.
jer se radi o kontinuiranom pokretu.
04:30
There's this other man
who also suffers from the same symptoms
who also suffers from the same symptoms
77
258399
3137
Postoji još jedan čovek
koji pati od istih simptoma
koji pati od istih simptoma
04:33
and uses a walker,
78
261560
1416
i koristi šetalicu,
04:35
but the moment he's put on a cycle,
79
263000
2096
ali kada ga stavite na bicikl,
04:37
all his symptoms vanish,
80
265120
1696
svi njegovi simptomi nestaju,
04:38
because it is a continuous motion.
81
266840
2080
jer je to kontinuiran pokret.
04:41
So the key for me was to translate
this feeling of walking on a staircase
this feeling of walking on a staircase
82
269560
4296
Za mene je ključ bio u tome da se prevede
ovaj osećaj hodanja po stepenicama
ovaj osećaj hodanja po stepenicama
04:45
back to flat land.
83
273880
1400
u osećaj hodanja po ravnom.
04:47
And a lot of ideas
were tested and tried on him,
were tested and tried on him,
84
275880
2936
Isprobali smo mnogo ideja na njemu,
04:50
but the one that finally worked
was this one. Let's take a look.
was this one. Let's take a look.
85
278840
3520
ali konačno je funkcionisala ova.
Hajde da pogledamo.
Hajde da pogledamo.
04:57
(Laughter)
86
285440
3056
(Smeh)
05:00
(Applause)
87
288520
4456
(Aplauz)
05:05
He walked faster, right?
88
293000
1456
Hodao je brže, zar ne?
05:06
(Applause)
89
294480
3200
(Aplauz)
05:11
I call this the staircase illusion,
90
299240
2776
Ovo zovem iluzijom stepenica,
05:14
and actually when the staircase illusion
abruptly ended, he froze,
abruptly ended, he froze,
91
302040
4576
i zapravo kada se iluzija naglo završila,
on se zamrznuo u mestu,
on se zamrznuo u mestu,
05:18
and this is called freezing of gait.
92
306640
2016
a ovo se zove zamrzavanje hoda.
05:20
So it happens a lot,
93
308680
1216
To se dešava često,
05:21
so why not have a staircase illusion
flowing through all their rooms,
flowing through all their rooms,
94
309920
3936
pa zašto ne bismo imali
iluziju stepenica u svim njihovim sobama,
iluziju stepenica u svim njihovim sobama,
05:25
making them feel much more confident?
95
313880
2360
kako bi oni imali
mnogo više samopouzdanja?
mnogo više samopouzdanja?
05:29
You know, technology is not always it.
96
317440
2656
Nije uvek stvar u tehnologiji.
05:32
What we need are human-centered solutions.
97
320120
2776
Potrebna su nam rešenja
fokusirana na ljude.
fokusirana na ljude.
05:34
I could have easily
made it into a projection,
made it into a projection,
98
322920
2216
Lako sam mogla od toga
da napravim projekciju
da napravim projekciju
05:37
or a Google Glass, or something like that.
99
325160
2336
ili Gugl naočare ili nešto slično.
05:39
But I stuck to simple print on the floor.
100
327520
2320
Ali držala sam se jednostavne
odštampane slike na podu.
odštampane slike na podu.
05:42
This print could be taken into hospitals
101
330360
2936
Ova slika se može staviti u bolnice
05:45
to make them feel much more welcome.
102
333320
2400
kako bi se oni osećali dobrodošlim.
05:48
What I wish to do
is make every Parkinson's patient
is make every Parkinson's patient
103
336600
3096
Želim da se svaka osoba
obolela od Parkinsonove bolesti
obolela od Parkinsonove bolesti
05:51
feel like my uncle felt that day.
104
339720
2456
oseća kao moj ujak tog dana.
05:54
He told me that I made him feel
like his old self again.
like his old self again.
105
342200
3680
Rekao mi je da se zbog mene osećao
kao onaj stari.
kao onaj stari.
05:59
"Smart" in today's world
has become synonymous to high tech,
has become synonymous to high tech,
106
347120
4000
"Pametno" je u današnjem svetu
sinonim za visoku tehnologiju,
sinonim za visoku tehnologiju,
06:03
and the world is only getting
smarter and smarter day by day.
smarter and smarter day by day.
107
351960
3160
i svet iz dana u dan
postaje sve pametniji.
postaje sve pametniji.
06:07
But why can't smart be something
that's simple and yet effective?
that's simple and yet effective?
108
355800
3680
Ali zašto pametno ne bi moglo biti
nešto što je jednostavno i efikasno?
nešto što je jednostavno i efikasno?
06:12
All we need is a little bit of empathy
and some curiosity,
and some curiosity,
109
360320
3976
Potrebno nam je samo malo saosećanja
i znatiželje
i znatiželje
06:16
to go out there, observe.
110
364320
2256
da izađemo, posmatramo.
06:18
But let's not stop at that.
111
366600
1896
Ali nemojmo stati tu.
06:20
Let's find these complex problems.
Don't be scared of them.
Don't be scared of them.
112
368520
3656
Pronađimo ove složene probleme.
Nemojte ih se plašiti.
Nemojte ih se plašiti.
06:24
Break them, boil them down
into much smaller problems,
into much smaller problems,
113
372200
3576
Slomite ih, razgradite ih
na mnogo manje probleme,
na mnogo manje probleme,
06:27
and then find simple solutions for them.
114
375800
2496
i onda za njih nađite prosta rešenja.
06:30
Test these solutions, fail if needed,
115
378320
3016
Isprobajte ova rešenja,
neuspešno ako je to potrebno,
neuspešno ako je to potrebno,
06:33
but with newer insights to make it better.
116
381360
2160
ali sa novim uvidima u to
kako da ih poboljšate.
kako da ih poboljšate.
06:36
Imagine what we all could do
if we all came up with simple solutions.
if we all came up with simple solutions.
117
384240
4256
Zamislite šta bismo sve mogli da uradimo
ako bismo smislili prosta rešenja.
ako bismo smislili prosta rešenja.
06:40
What would the world be like
if we combined all our simple solutions?
if we combined all our simple solutions?
118
388520
3480
Kakav bi svet bio kada bismo svi
kombinovali svoja prosta rešenja?
kombinovali svoja prosta rešenja?
06:44
Let's make a smarter world,
but with simplicity.
but with simplicity.
119
392880
3016
Napravimo pametniji svet,
ali uz pomoć jednostavnosti.
ali uz pomoć jednostavnosti.
06:47
Thank you.
120
395920
1216
Hvala vam.
06:49
(Applause)
121
397160
3040
(Aplauz)
ABOUT THE SPEAKER
Mileha Soneji - Product designerMileha Soneji believes that having empathy and being able to put yourself in another person's shoes is what makes for great design.
Why you should listen
Mileha Soneji is a trained strategic product designer, originally hailing from the city of Pune in India. She currently works in the Netherlands as a strategist. Her work entails combining the fuzzy front-end of the design process with emerging technologies to answer the question of what needs to be designed in the future.
Even as a child, Mileha had a keen interest in (re)designing things around her, even though she had little knowledge about it as a profession. This led her to take up the Bachelor in Product Design at the MIT School of Design. After graduation, she got a couple of years of work experience in India, where she quickly realized that apart from the actual tangible design, a successful product needs a backbone of thorough research in user needs and market analysis. The need to study this further brought Mileha to Delft University of Technology in the Netherlands to study Strategic Product Design for her Masters.
Mileha Soneji | Speaker | TED.com