Beth Malone: How my dad's dementia changed my idea of death (and life)
Beth Malone: Hur min fars demens förändrade min uppfattning om döden (och livet)
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks. Full bio
Double-click the English transcript below to play the video.
that hits people in their 50s or 60s.
i 50- eller 60-årsåldern.
till och med våldsamma.
blev han riktigt sjuk,
with his own hands.
with the falsetto singing voice
som kunde sjunga i falsett
for round-the-clock care
and I made the mistake
och jag misstaget
and afternoon art classes
everybody with cutlery.
the curtains off the wall,
to throw plants out the window.
the old ladies out of their wheelchairs."
ur sina rullstolar."
a bunch of state-run facilities
specifically for people with dementia.
som var anpassat för dementa.
on the ground wearing a onesie --
sittande på golvet i en overall -
that zip in the back.
as he yanked at it,
när han drog i den,
coming out of the pit of my belly.
was worth living anymore.
var ett värdigt liv.
to prioritize productivity.
att prioritera produktivitet.
an Adonis in this case --
in the way we expect him to be,
på det sätt som vi förväntar oss,
was that my dad was being tortured
the vessel of that torture.
var källan till tortyren.
I'm going to kill Dad.
to live the rest of your life
how to buy heroin."
about his death a lot.
about death when we were all healthy.
när vi alla var friska.
and then a support group,
when they're worried about loved ones.
för sina nära och kära.
and it's OK to go when you're ready.
så kan dom gå, vi är trygga.
on the ground in the onesie.
på golvet i overallen.
and just kind of looking at the ground.
about nothing in particular,
he sneezed from the ginger ale.
it jerked his body upright,
att räta upp sig,
and sparking, over and over and over again
nysa och gnistra, om och om igen
and he was looking at me,
because I'm just a mess.
he seemed kind of OK.
verkade han ganska ok.
was still attached to his body.
fanns kvar inne i kroppen.
och mig själv bäst
as father and daughter.
som far och dotter.
men jag kommer imorgon."
ABOUT THE SPEAKERBeth Malone - Social entrepreneur, artist
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks.
Why you should listen
Beth Malone is executive director and partner at Dashboard US, an award-winning, experimental creative agency. Dashboard has presented exhibitions and special artist projects in cities around the country including New York, New Orleans, Atlanta, and Detroit. Dashboard has commissioned new, nontraditional works from over 200 artists.
Malone encourages artists to have a sense of humor, to be vulnerable and take creative risks, a practice she employed for herself when processing illness, caretaking and death. In 2014, she and her dad were sitting on a couch in a psychiatric hospital in Atlanta, GA. He looked at her and said, "I’m gonna be lost after this. After this, I’m gonna be gone." In August 2017, her dad passed away from frontotemporal lobe dementia -- just two months after she gave her TED Talk. It was a good death.
Beth Malone | Speaker | TED.com