Beth Malone: How my dad's dementia changed my idea of death (and life)
Beth Malone: Hur min fars demens förändrade min uppfattning om döden (och livet)
Beth Malone - Social entrepreneur, artist
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks. Full bio
i 50- eller 60-årsåldern.
that hits people in their 50s or 60s.
till och med våldsamma.
blev han riktigt sjuk,
with his own hands.
som kunde sjunga i falsett
with the falsetto singing voice
for round-the-clock care
och jag misstaget
and I made the mistake
and afternoon art classes
everybody with cutlery.
the curtains off the wall,
to throw plants out the window.
ur sina rullstolar."
the old ladies out of their wheelchairs."
a bunch of state-run facilities
som var anpassat för dementa.
specifically for people with dementia.
sittande på golvet i en overall -
on the ground wearing a onesie --
that zip in the back.
när han drog i den,
as he yanked at it,
coming out of the pit of my belly.
var ett värdigt liv.
was worth living anymore.
att prioritera produktivitet.
to prioritize productivity.
an Adonis in this case --
på det sätt som vi förväntar oss,
in the way we expect him to be,
was that my dad was being tortured
var källan till tortyren.
the vessel of that torture.
I'm going to kill Dad.
to live the rest of your life
how to buy heroin."
about his death a lot.
när vi alla var friska.
about death when we were all healthy.
and then a support group,
för sina nära och kära.
when they're worried about loved ones.
så kan dom gå, vi är trygga.
and it's OK to go when you're ready.
på golvet i overallen.
on the ground in the onesie.
and just kind of looking at the ground.
about nothing in particular,
he sneezed from the ginger ale.
att räta upp sig,
it jerked his body upright,
nysa och gnistra, om och om igen
and sparking, over and over and over again
and he was looking at me,
because I'm just a mess.
verkade han ganska ok.
he seemed kind of OK.
fanns kvar inne i kroppen.
was still attached to his body.
och mig själv bäst
som far och dotter.
as father and daughter.
men jag kommer imorgon."
About the speaker:Beth Malone - Social entrepreneur, artist
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks.
Why you should listen
Beth Malone is executive director and partner at Dashboard US, an award-winning, experimental creative agency. Dashboard has presented exhibitions and special artist projects in cities around the country including New York, New Orleans, Atlanta, and Detroit. Dashboard has commissioned new, nontraditional works from over 200 artists.
Malone encourages artists to have a sense of humor, to be vulnerable and take creative risks, a practice she employed for herself when processing illness, caretaking and death. In 2014, she and her dad were sitting on a couch in a psychiatric hospital in Atlanta, GA. He looked at her and said, "I’m gonna be lost after this. After this, I’m gonna be gone." In August 2017, her dad passed away from frontotemporal lobe dementia -- just two months after she gave her TED Talk. It was a good death.
Beth Malone | Speaker | TED.com