Beth Malone: How my dad's dementia changed my idea of death (and life)
Beth Malone: Como a demência do meu pai mudou minha ideia sobre a morte (e sobre a vida)
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks. Full bio
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frontotemporal, ou DFT.
that hits people in their 50s or 60s.
pessoas de 50 ou 60 anos.
a personalidade de alguém,
com suas próprias mãos.
with his own hands.
with the falsetto singing voice
com um falsete cantante
for round-the-clock care
com cuidados de 24h ao dia já aos 65 anos.
and I made the mistake
e minhas irmãs cometemos o erro
and afternoon art classes
e aulas de arte vespertinas
everybody with cutlery.
the curtains off the wall,
to throw plants out the window.
the old ladies out of their wheelchairs."
pra fora das cadeiras de rodas".
a bunch of state-run facilities
specifically for people with dementia.
específico para aqueles com demência.
sua saúde piorou e, um dia,
no chão usando um macacão...
on the ground wearing a onesie --
that zip in the back.
as he yanked at it,
uma camisa de força.
bem do fundo da minha barriga.
coming out of the pit of my belly.
was worth living anymore.
viver daquele jeito.
to prioritize productivity.
a priorizar a produtividade.
an Adonis in this case --
um Adônis nesse caso,
in the way we expect him to be,
was that my dad was being tortured
estava sendo torturado
the vessel of that torture.
para aquela tortura.
I'm going to kill Dad.
vou matar o meu pai.
to live the rest of your life
sabendo que você matou seu pai.
pois ele não pode te absolver.
how to buy heroin."
de como comprar heroína".
muito sobre a morte dele.
about his death a lot.
about death when we were all healthy.
quando estávamos todos saudáveis.
and then a support group,
e todos disseram a mesma coisa:
ao se preocupar com alguém amado.
when they're worried about loved ones.
bem ir embora quando estiver pronta.
and it's OK to go when you're ready.
on the ground in the onesie.
no chão usando o macacão.
and just kind of looking at the ground.
que olhando para o chão.
e comecei a falar sobre nada demais,
about nothing in particular,
he sneezed from the ginger ale.
ele espirrou por causa do refrigerante.
it jerked his body upright,
and sparking, over and over and over again
e faiscando de novo e de novo
and he was looking at me,
e ele olhava para mim,
morrer, nós estamos bem".
tudo que consegui dizer foi: "Pai!
because I'm just a mess.
he seemed kind of OK.
de muito tempo ele parecia bem.
was still attached to his body.
dele ainda estava em seu corpo.
de ajudá-lo e me ajudar
as father and daughter.
os papéis de pai e filha.
ABOUT THE SPEAKERBeth Malone - Social entrepreneur, artist
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks.
Why you should listen
Beth Malone is executive director and partner at Dashboard US, an award-winning, experimental creative agency. Dashboard has presented exhibitions and special artist projects in cities around the country including New York, New Orleans, Atlanta, and Detroit. Dashboard has commissioned new, nontraditional works from over 200 artists.
Malone encourages artists to have a sense of humor, to be vulnerable and take creative risks, a practice she employed for herself when processing illness, caretaking and death. In 2014, she and her dad were sitting on a couch in a psychiatric hospital in Atlanta, GA. He looked at her and said, "I’m gonna be lost after this. After this, I’m gonna be gone." In August 2017, her dad passed away from frontotemporal lobe dementia -- just two months after she gave her TED Talk. It was a good death.
Beth Malone | Speaker | TED.com