Beth Malone: How my dad's dementia changed my idea of death (and life)
Bet Maloun (Beth Malone): Kako je demencija mog tate promenila moju predstavu o smrti i životu
Beth Malone - Social entrepreneur, artist
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks. Full bio
u 50-im ili 60-im godinama.
that hits people in their 50s or 60s.
iz njegove kuće -
with his own hands.
with the falsetto singing voice
u ustanovu za danonoćnu negu
for round-the-clock care
and I made the mistake
popodnevne časove umetnosti
and afternoon art classes
uhapsili smo vašeg oca.“
everybody with cutlery.
the curtains off the wall,
da baci biljke kroz prozor.
to throw plants out the window.
je sve starice iz kolica.“
the old ladies out of their wheelchairs."
u gomilu državnih ustanova
a bunch of state-run facilities
posebno namenjen ljudima sa demencijom.
specifically for people with dementia.
dok je nosio kombinezon -
on the ground wearing a onesie --
that zip in the back.
oko sat vremena dok ga je vukao,
as he yanked at it,
njegovom starom kamionu, pogurena,
dopirao iz moje stomačne duplje.
coming out of the pit of my belly.
da poverujem da bi moj otac,
više vredan življenja.
was worth living anymore.
to prioritize productivity.
an Adonis in this case --
onako kako to očekujemo od nje,
in the way we expect him to be,
jeste da se moj tata muči
was that my dad was being tortured
the vessel of that torture.
iz tog tela; ubiću tatu.
I'm going to kill Dad.
to live the rest of your life
how to buy heroin."
o njegovoj smrti.
about his death a lot.
o smrti dok smo zdravi.
about death when we were all healthy.
pa onda u grupu za podršku,
and then a support group,
when they're worried about loved ones.
kada su zabrinuti za svoje voljene.
and it's OK to go when you're ready.
i da je u redu da odu kad su spremni.
na zemlji u kombinezonu.
on the ground in the onesie.
i nekako gledao u zemlju.
and just kind of looking at the ground.
ni o čemu naročito,
about nothing in particular,
kinuo je zbog soka sa đumbirom.
he sneezed from the ginger ale.
u uspravan položaj,
it jerked his body upright,
kija i trza se iznova i iznova,
and sparking, over and over and over again
i gledao je u mene.
and he was looking at me,
da izgovorim bilo je: „Tata!
„Pa, nedostaješ i ti meni.“
jer sam prosto u haosu.
because I'm just a mess.
nekako izgledao u redu.
he seemed kind of OK.
što je njegov duh još vezan za telo.
was still attached to his body.
da pomognem i njemu i sebi
as father and daughter.
About the speaker:Beth Malone - Social entrepreneur, artist
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks.
Why you should listen
Beth Malone is executive director and partner at Dashboard US, an award-winning, experimental creative agency. Dashboard has presented exhibitions and special artist projects in cities around the country including New York, New Orleans, Atlanta, and Detroit. Dashboard has commissioned new, nontraditional works from over 200 artists.
Malone encourages artists to have a sense of humor, to be vulnerable and take creative risks, a practice she employed for herself when processing illness, caretaking and death. In 2014, she and her dad were sitting on a couch in a psychiatric hospital in Atlanta, GA. He looked at her and said, "I’m gonna be lost after this. After this, I’m gonna be gone." In August 2017, her dad passed away from frontotemporal lobe dementia -- just two months after she gave her TED Talk. It was a good death.
Beth Malone | Speaker | TED.com